My wish is for my friends Jaden and his father Richie who live in
Alberta Canada.
Jaden was born with a defect that required him to have a trachea
since birth. He has lived with it for five years, unable to talk or
eat due to it. Due to the frustration of being unable to
communicate Jaden began hitting himself. He now must wear weights
on his wrists to keep him from hurting himself.
Recently, after so much prayer,his trachea was removed for the
first time. However, last week he was hospitalized with pneumonia
and had to be re-trached. He was also heavily sedated so that his
body could heal. His father said although he was sedated tears
would still fall from his closed eyes. He is getting better though,
and they are going to attempt removing the trachea today or
tomarrow.
Jaden is far behind those his own age due to his condition. This is
frustrating for him, and heart breaking for his family.
My wish is that for Jaden's 5th birthday (begining of April), that
he would be given a voice of his own, a way to communicate.
I have attached a link to a device called an MV-1000. It is a
communication device made for children with such conditions. I
truely belive that this could help him so much. I have $50.00
toward it's purchase, but the cost is $398.00.
Also, cards for Jaden would be great. Lot of prayer is always
needed. And his father Richie has strong faith, but even the
greatest warriors can grow weary. Letters of encouragement for him
would be awesome.
Thank you all so much for your time and support.
www.digitalvoicetech.com/mv-1000.htm
Luke638
16 months ago
I would like to thank everyone who has been involved in making this wish come true. You are all true heros! Thank you on behalf of Jaden and his family, and from the bottom of my heart. This wish will be paid forward.
pacdream 16 months ago
i saw you thx evryone chat. i wish i deserved thx. what a wonderful wish.
Luke638
16 months ago
I will have the paper work tomarrow for the verification!!! Thank you for waiting!
danniec
17 months ago
Josh, Missouri Chapter Will join in to help. Please contact me Josh.
Barbara Missouri Chapter Director, Wish Ambassador
klr1981
17 months ago
Could you please contact security or administration and have this wish verified so we may move forward? Thank you.
If you need any help with that please feel free to contact me.
-Josh-
Walk On Heroes Director
PA Chapter Director
canadiangirl
17 months ago
His card will be in the mail next week and I pray that everything works out for him to get this device...wish I could do more. God bless you for making this wish for him.
klr1981
17 months ago
I am working on it. Give me a few more days. Thanks.
-Josh-
Luke638
17 months ago
Oh, that's good to know...and I agree, it really gives you faith in people and helps you see the good in this world, which seems hard to come by these days
ckirkman
17 months ago
I don't think you will have to contact administration since Josh is already involved they should be aware of it. I think it is amazing how much progress has already been made on your wish in less than 24 hours. This community is truly something else.
Luke638
17 months ago
thanks canadagirl
Luke638
17 months ago
I was informed recently that if someone from the wish upon a hero administration bought a used palm and paid the 25.00 for shipping the digital voice company would donate the 200.00 software. I think it has to be the administration though (prob. a tax write-off thing). The palm tungsten e2 is the palm they suggest. They are on e-bay for about 100.00. Does anyone know how to go about contacting administration?
canadiangirl
17 months ago
I contacted the company that makes the digital voice tech and they responded:
If you could get an administrator at Wish Upon a Hero to purchase the Palm and pay the $25 s/h we would gladly donate the software. We just donated a copy of the software last month to the Illinois Chapter and that's how we proceeded with the transaction. Does anyone know how to proceed with this?
bbwvixen
17 months ago
I'd love to send him a birthday card :)
cdnali 17 months ago
Hello,
Have you looked into the Ability Society of Alberta?
http://www.abilitysociety.org/enable.htm#crc
This will take you to the assessment, their staff will travel all over Alberta to assess clients for Assistive and Augmentative Communication Devices (AAC) which is what you are looking for.
Or you can go through the Speech Pathologist that is assigned to the school - if he is in school.
In theory the government should pay for the item - either through the Ministry of Education or this program:
http://www.seniors.gov.ab.ca/aadl/PilotProjects/SGCD/default.asp
It says Seniors but from what I read, I believe you would qualify.
lindalou1du
17 months ago
we'd love to send a card and offer tons of daily prayers for him and your whole family. God Bless! linda